Blog

Welcome to the Spire Community Blog. This is a place for our community to connect by sharing views and experiences, by finding common ground, or by discussing differences.

Content will range from short stories with a black humour element, to serious articles with sources cited.
Spinal Cord Injury (SCI) may, or may not, take centre stage. This is about life in its entirety and sometimes the SCI and the effects it has on our life is our main focus, and sometimes it’s not even in view.

Our bloggers are community members, who all live with a SCI, whether it is their own, or a family member’s.
You are invited to comment on the posts and we also welcome guest contributions; feel free to contact us if you'd like to become a guest blogger for Spire.

 

Do It Differently!
9 June, 2017

Do you remember a time when you were so excited, bursting with energy, unable to stop yourself from telling your family, partner, friends or even a total stranger what your next exciting goal or adventure would be? 

Read More
2
Pattaya, Thailand
1 June, 2017
Spire team leader Naz Erdem, recently travelled to Pattaya Thailand for an 11 day trip and whilst out there, met up with his good friends Nathan & Gap to experience the city's vibrant nightlife, culture and stunning beaches. Read More
1
We Need to Talk About Sex...
8 May, 2017

A spinal cord injury is a life changing event. Discovering I had lost the use of my bladder and bowel, as well as sexual function filled me with immense shame. It was hard enough to deal with bladder and bowel dysfunction that I shut down any sexual desire or need for intimacy.

Read More
3
Intelligence is the ability to change
26 April, 2017

Emma Booth, Australian Equestrian Paralympian, shares her experiences of personal growth, and all things horses, after becoming a paraplegic at the age of 21. 

Read More
1
Being Busy Is Not A Badge of Honour.
20 April, 2017

Whatcha been up to?”

“I’ve been soooo busy.”

You hear it all the time, right? It’s like it’s a badge of honour and if you haven’t been busy, then somehow something’s not right about that.

Read More
0
My Return to a Working Life
10 April, 2017

Alex is a very social wheelchair user around town, he shares his journey back to employment post-spinal cord injury...

Read More
2
Narrow The Focus
30 March, 2017

Apparently using the excuse "I’ve been too busy" for not getting things done is not an excuse any more! The last few podcast interviews of very high profile successful people, who have major projects on the go, all say the same thing: "being busy is a myth".

Read More
0
My podcast. My rules
20 March, 2017

In his latest blog, Lachlan McLeod talks about writing, making podcasts and employment issues for people living with SCI.

Read More
0
Yes, I bought a Jeep.
6 March, 2017

Regaining your driver’s licence post-SCI can be a great personal achievement. Alan shares the intricacies of purchasing a new car, and the adventures it can lead to!  

Read More
0
My Arthurs Seat Sky Lift Experience
12 February, 2017

Wayne ventured to the newly opened Arthurs Seat Eagle gondola ride which gives visitors of all abilities the chance to take in the Mornington Peninsula from a bird’s eye view. Read about his experience!

Read More
0
The Power of Peer Support
25 November, 2016

The emotional stresses and extra challenges faced by people living with a spinal cord injury (SCI) can have profound effects on their health and quality of life. Peer-support is an effective way of combatting these stresses and challenges and provides an immense range of benefits.

Read More
0
More than a comic shop
2 November, 2016
Lachlan celebrates Melbourne comic book store, All Star Comics, and their commitment to inclusivity. Read More
1
The Highs & Lows of IVF and Being A New Dad
18 October, 2016

Diverting from his standard blogs topics about nutrition, movement and mindset, Curtis shares his journey of becoming a new father…

Read More
1
Don't Wait!
28 September, 2016

Regaining your driver’s license post-SCI can be simple and stress free; leading to personal achievement and independence…

Read More
1
In Praise of Carers...
19 September, 2016

A story that highlights the incredible importance of carers!

Read More
3
The Ups and Downs of Life
6 September, 2016

A change of pace from some of the usual stories, Geoff Dossetor recalls his travel experiences and how he was inspired to take up mouth painting.

Geoff is sharing his story for Spinal Cord Injury Awareness Week  (5 – 11 September 2016) to encourage people in the community to ‘Think I Can't, Think Again’ - about what it means to have a spinal cord injury (SCI) and to help encourage and create a more inclusive and accessible community for everyone.

Read More
0
Life in the Fast Lane
31 August, 2016

A story that tests the independent components of living in an over 55 Independent Living Rental Facility and offers a little more insight into the pleasures of quadriplegia!

Read More
0
Against All Odds - Wayne's Story
26 August, 2016

An inspiring story from 2005 about how Wayne and Jodie fell pregnant against the odds.

Read More
0
The Paddle Wheel Murray River Expedition
5 August, 2016

Picture the spectacular sunrises and sunsets of the Mallee, the brilliance of the reds, mauves, oranges and yellows, transforming the sky into a magnificent light show.

Read More
0
Courtesy, Shop Entrance Ways and The Phone Zombie.
15 July, 2016

Let me start by saying that I'm a big fan of people being courteous to one another.

Read More
1
MCW, MCW, MCW!
4 July, 2016

Already a fan or not, Lachlan McLeod shares his passion for Melbourne City Wrestling (MCW) and the joy that can come from being actively involved in your hobbies and interests!

Read More
0
Seeking Employment Post-SCI
14 June, 2016

Raelene West, research assistant at RMIT University is interviewed about her personal experiences and the challenges that she and other people living with disabilities can face when seeking employment. Raelene is also part of the Professionals with SCI Network Group (PROwSCI).

Read More
0
My perceptions of body image post-SCI
30 May, 2016

Georgina Fiorentino writes about her views on body image, being realistic and maintaining a healthy and active life - sharing her own personal journey and the ways in which she maintains a positive mindset.

Read More
2
Why I am apprehensive about the NDIS
22 May, 2016

Feeling apprehensive about the NDIS, Lachlan shares his thoughts and experiences so far around the complexities of the new Disability Scheme.

He also explores the importance of taking breaks and enjoying passions and hobbies - and for Lachlan that is Melbourne City Wrestling!!

Read More
4
Healthier at 40 than 30
14 April, 2016
Lachlan shares what we can discover about ourselves as he strives to be healthier in his 40s than 30s. Read about what he learns and his thoughts and experiences in this endeavour. Read More
0
I want to get fit but I don’t want to go to the gym
29 March, 2016

Curtis Palmer shares his experiences, tips and alternatives to gyms in dealing with your health and fitness and finding ways in which to reach your fitness goals.

Read More
0
It’s not all about car accidents
16 March, 2016

I believe that you shouldn’t waste opportunities. This is especially true for people with disability because I feel we don’t get enough to begin with. Lachlan shares his thoughts on how new and emerging technologies can provide greater options for those living with a SCI.

Read More
0
Surf, Sand and Sun
8 March, 2016

Stephen Callinan provides an interesting and informative account of his trip with friends to Hamilton Island. Sharing his tips on planning, thinking on the spot and enjoying beach life!

Read More
0
My Pathway to Employment
29 February, 2016

Sharyn Craven shares her story about becoming a quadriplegic in high school. Her courage and determination in setting new career goals and the hurdles and barriers she overcame to reach study and employment outcomes and personal achievements.

Read More
0
It’s not even a holiday
16 February, 2016

Lachlan McLeod has been a quadriplegic his whole life. Currently he is writing a blog to help demonstrate that people with disabilities can lead fulfilling lives. Read about his personal life experiences, travel and his thoughts about the NDIS.

Read More
0
Journey to study and beyond
1 February, 2016

Stephen Callinan shares his story about acquiring a spinal cord injury at the age of 17; his motivations to return to high school to complete his VCE, his journey into university and what he envisions for the future.

Read More
4
Clean Eating Limits Cheating
11 January, 2016

Ok so now it’s time to get really serious about my health and weight, and as per my Blog summary I am supposed be on a weight loss journey. I have been home now 9 months which has been ample time to settle in and get a routine. As with many, the whole New Year, new start thing has been a number one opportunity to clean up my eating and increase my moving.

Read More
1
Snorkelling
17 December, 2015

Anthony Bartl provides a thrilling and entertaining account of his first snorkelling adventure on the Great Barrier Reef.

Read More
0
Macca's road trip tips
11 November, 2015

Macca is currently on a marathon road trip from Darwin, through Queensland's sunshine coast, NSW and, eventually Melbourne. He's travelling with his carer and partner Jess and his dog Horsey. Here he shares his list of tips he's learnt so far.

Read More
3
Spinal injury doesn't need to mean a life of no adventures
10 November, 2015
Gillian Fowler lives in Scotland and fell off a horse in 2008, breaking her back. She has since gone on to start BackStrong Adventures (www.backstrongadventures.com), an organisation that specialises in outdoor adventures. She writes here about her recent kayaking adventure in Croatia's Dalmatia coast. Read More
0
SCI Poem
9 October, 2015

A Poem about SCI written by Jacinta.

Read More
4
No longer a newbie
1 October, 2015

Jacinta recently marked her first anniversary with SCI. She reflects on her journey and highlights the tops five indicators that she reckons shows she has "come of age" living with SCI

Read More
3
Beware the white ants
29 September, 2015

Kevin's blog is about his journey pre SCI and the challenges he has faced post injury.  Support of family and friends has been very important as he reinvented himself.  He has a great style of writing and his analogies with nature are a simple but brilliantly effective way of conveying his journey and message.

Read More
0
SCI and Exercise
7 September, 2015

Martin Leckey talks about his exercise regime at the gym at his local council leisure centre, the significance of exercise to people living with SCI and particularly to him after his episode of bladder cancer in 2012.

Read More
0
Be Realistic
30 August, 2015

Blogger Jacinta writes about her need to be realistic about what she wants to do; and not feel regret about things she would never have done anyway - SCI or not - like climbing Mount Everest!

Read More
2
How SCI changed my life for the better
25 August, 2015

Blogger Jacinta writes about how her injury challenged her to transition from an unhappy upright to a happy and motivated quad.

Read More
1
Gillian Fowler - My Journey
10 August, 2015
Gillian Fowler lives in Scotland and fell off a horse a few years ago, breaking her back. At the time, the fear was that she may have also broken her neck. Multiple surgeries and years of rehabilitation meant that she was recently able to return to her love of the great outdoors. She writes here about her journey and why she started BackStrong Adventures (www.backstrongadventures.com), an organisation that specialises in outdoor adventures. Read More
0
The Quadrankle
4 August, 2015
Blogger Dagwood Johnson provides the solution to the Quadrankle - the quadraplegic's equivalent of the plumber's crack. It's bound to crack you up one way or another! Read More
0
Life's special moments: Father - daughter wedding dance
14 July, 2015

Brittany Dejean talks about dancing with her dad at her wedding. 

Read More
0
Health, Fitness & Mindset with Curtis - Part 2
22 June, 2015

Curtis Palmer - paralympian and qualified personal trainer - shares his wealth of knowledge on health, fitness and mindset.

In his 2nd instalment, he talks about "Where to from here" and goal-setting.

Read More
0
Health, Fitness & Mindset with Curtis - Part 1
8 April, 2015

Curtis Palmer - paralympian and qualified personal trainer - shares his wealth of knowledge on health, fitness and mindset.

Read More
0
The Hoist
6 April, 2015
Blogger Dagwood Johnson shares his views on the practicalities (and lack thereof) of portable hoists through his experience over the years at the Austin Hospital. Read More
0
SCI and Bladder Cancer
8 December, 2014

Martin Leckey discusses the impact of a diagnosis of bladder cancer on his life, and why people with SCIs are more prone to bladder cancer. 

Read More
0
Macca's Darwin Roadtrip - Part 1/2
7 November, 2014

Macca gets into his Gold Chrysler in Echuca and sets off for the Northern Territory for the ultimate road trip through the Red Centre.

Read More
0
Rules of Engagement with a Wheelchair
6 November, 2014
Blogger Dagwood Johnson outlines proper etiquette for 'uprights' when lending a hand to a 'wheelie'. Read More
1
Macca's Darwin Roadtrip - Part 2/2
30 October, 2014

Ramps made of old doors, fly-in carers, thousands of kilometres, catching up with a few ‘Bennys’ and being tracked down by Channel 7? Yep, it could only be another Macca story.

Read More
0
My colostomy and me!
1 August, 2014

Kate frankly talks about her bowel care and that getting the colostomy as "the best thing I have done in the three years since my SCI".

Read More
1